By Trevor Pacelli 2023 is ending, so I figured now would be a good time to share some of my upcoming projects for 2024, as well as how working on these projects has given me multiple opportunities to be a storyteller. Read the full post
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By Trevor Pacelli Gift-giving at Christmas time can be difficult for anyone, but even more so for someone on the autism spectrum such as myself. Throughout my childhood and most of my adulthood, my family gave each other Christmas gifts the same way most everyone else does, by giving each family member a present we picked ourselves. That meant every year, I got one gift from Mom, one from Dad, and one from my sister. In turn I gave a gift to each of them. I also got a gift from my grandparents, and when my sister got married, her husband was included in the gift-giving. This system worked out fine throughout my childhood, as we got the whole routine done in about twenty minutes, and my sister and I just spent the rest of Christmas day playing with our gifts and watching A Christmas Story on TBS. But things changed as we got older. Nowadays, my family and I are all the type of people who already feel content with what we currently own; whenever we want/need something, we just buy it ourselves instead of waiting for someone else to do it for us. So, when it came to putting together Christmas wish lists, thinking of what to put on our lists became more and more stressful for all of us, and having to stick to the lists just took out the personal feeling behind a present. I’ve tried in the past to deviate from the wish lists I’ve received from family members, and that only resulted in hurt feelings. Furthermore, it was a symptom of an even bigger problem of mine, my inability to truly understand others. Because I never had much common sense in assessing the personal interests of others, I never knew exactly what someone would want in a present. To add to the damage, I was expected to just know all these many unspoken rules of gift exchanges, such as following a price limit so that it’s not too expensive or too cheap. The gift-giving exchange was much easier for me as a kid, because I could get excited for whatever toys I’d be getting, and I wasn’t expected to select meaningful gifts for my other family members (or my mom would just help me find the right gifts). But once I became an adult and was suddenly expected to put some actual thought into my gifts, the holiday officially started to feel like work rather than a joy. The rest of my family were feeling similar emotions, so in 2019, we shook things up. Rather than gifts, we gave each other cookies. I made four different sweet treats for each family member: one for Mom, one for Dad, one for my sister, and one for my brother-in-law. I also got cookies from them in exchange. Although I’ll admit my treats didn’t turn out perfectly, we were still satisfied with doing Christmas this way, and we’ve kept this tradition ever since. We have kept a scaled-down version of traditional gift-giving. We put our names on separate pieces of paper, each drawing a name, and that’s who we give a gift to, one that’s between $20-$30. We did this before starting our new cookie tradition, except before the gifts were stored in our stockings. But now we just traditionally wrap these gifts instead of using the stockings. (In fact, stockings have now become so irrelevant to our Christmases that my Mom did not even bother putting them up on the mantlepiece this year.) Since making this switch, we no longer write out Christmas wish lists or feel pressured to give everyone the right gift. And thus, Christmas has become a truly joyful time again. This whole system works better for me personally because it’s easier to learn another’s food tastes than which material objects would work best as gifts for them. Plus, I already love food, so creating unique family cookies is genuinely fun for me. You too can create your own holiday traditions in this way. Perhaps you have a severely autistic child who will never develop past the mentality of a three-year-old, so a suitable Christmas tradition to include them could be exchanging drawings or other works of art instead of traditional presents. That way, the autistic child could apply something they’re capable of doing without having to go through the stress of finding a gift for someone. That’s just one idea that can encourage you to use your imagination as you create new holiday traditions that demonstrate how unique your family is, and more importantly, to ensure nobody is left out on what should be the most joyous day of the year. Trevor is a young adult with autism and the author of several books, including Six-Word Lessons on Growing Up Autistic and What Movies Can Teach Us About Disabilities. By Trevor Pacelli Thanksgiving, like most holidays, is prone to overwhelm kids on the autism spectrum. It’s a day of having lots of guests in the house or going to see guests whose rules are different from back home. The kids are also expected to be present and active the whole time around family friends and relatives. Along with the constant socialization and change in routine, there are also lots of new, unfamiliar foods. To help your autistic child enjoy Thanksgiving despite the overwhelming amount of newness, here are some ideas to help: Schedule- Growing up, I always woke up at the same time, ate at the same times, and went to bed at the same time. I found comfort in routine and predictability. That’s why I needed to know what was going to happen, and when, to enjoy holiday celebrations. Even if I had to stay awake later and eat dinner later, being given an expectation of the day’s events and times helped me enjoy the day. You can do the same with your autistic child by giving them a schedule ahead of time of what Thanksgiving will look like. For example, 2:30 is when guests are going to arrive, 4:00 is dinner, 6:00 is dessert, 7:00 is the family game, and 9:30 is when the guests leave. Socializing- With my Thanksgivings, the kids often went and did their own thing separate from the grownups. I usually had minimal problems with this scenario since I often already knew the other kids fairly well. However, this wasn’t the case when we visited my dad’s relatives in Arizona, with many cousins I couldn’t name until I was in college. The problem was that I never got a proper introduction to who everyone was or how I was related to them. Thus, my time spent with them, not just for Thanksgiving but any celebratory occasion, was uncomfortable for me. So, it’s helpful to give your autistic child proper introductions to the kids of the host family so they’ll feel more comfortable and prepared. Food- Across my childhood, I rarely ate anything besides grilled cheese, French fries, macaroni and cheese, and most sweets. No matter how much my parents tried to encourage me to try new foods, I just hated the thought of eating anything new—even cheeseburgers were unappetizing until I was nine. Many autistic kids are hypersensitive to specific tastes, smells, and textures, which can make them even pickier eaters than other kids their age. To help your autistic child eat the given meal on Thanksgiving, give them the chance to taste something like turkey and other dishes a few days before. If they end up liking the food, great! You broke new ground! If not, don’t press on them to eat the unfamiliar foods on Thanksgiving. Let them eat the foods offered that they do enjoy eating and don’t worry if it’s just dinner rolls and cranberries. Bedtime- First of all, it’s a good thing when your autistic child wants to keep their routine of going to sleep the same time each night, for sleep experts agree that a consistent sleep cycle is crucial. So don’t think that your child is being whiny for wanting to go to bed at 9:00 like always when the party’s expected to keep going for another hour and a half. If you’re the one hosting, simply give your child permission to put themselves to bed at their scheduled time, or step away and help them. But if you’re at someone else’s house, knowing the schedule mentioned earlier comes in handy. Yet if they’re really exhausted and can’t carry on any longer, simply allow them some alone time. Just like how introverts need time to themselves to recharge, anyone with autism would need the same to not get overwhelmed. Thankfulness- It’s often tradition for people around the Thanksgiving table to share what they’re thankful for. The most common answers are usually, “I’m thankful for my parents” or “I’m thankful for our health and safety.” Yet don’t be surprised when it’s the autistic kid’s turn to share what they’re thankful for, and they say, “I’m thankful for SpongeBob SquarePants!” Most people with autism have a rather low priority for human relationships, especially since they don’t have the tendency to relate to other humans very easily. They find great comfort around fictional characters. If a child wants to say they’re thankful for Spider-Man or Bluey, don’t reprimand them or feel offended. It doesn’t mean they’re not grateful for you or their siblings. But more importantly, don’t force them to say they’re thankful for a person, because if pressured into saying this, they won’t mean it. Ultimately, the main takeaway is that no matter what your circumstances are like with your autistic child, don’t focus on trying to cover up the inconveniences. Instead, help your child draw attention to whatever excites them. Maybe they would be excited for the yummy cookies? Or maybe the games? Or maybe the movie you’ll all watch together? Focusing instead on what is fun for your child rather than a hindrance will give everyone in your family a chance to enjoy time as a community, forming fond memories that’ll last for years to come. Trevor Pacelli is a young adult author on the autism spectrum. He is the author of Six-Word Lessons on Growing Up Autistic, What Movies Can Teach Us About Disabilities, and other books. Guest blog by Jennifer MacGregor Caring for a child with a disability requires unswerving dedication plus emotional and physical resilience. The unique challenges make parental self-care an overlooked priority. Here are some strategies to help parents cope:
By Trevor Pacelli So many people of all ages love Halloween, yet this time of year could also really upset someone on the autism spectrum. Therefore, here are some essential tips that can help anyone with or without autism enjoy this spooky time of year despite the limitations: 1. Prepare for the Scares Kids with autism have many hyper-sensitivities, and since Halloween is the season of sending chills, an autistic child could turn queasier than usual at the sight of blood, even fake blood. For instance, they might strongly hesitate to step inside a costume shop full of ghoulish lawn decorations. It’s important that a parent is there to be on the lookout for such distressing decorations and guide their kid’s eyes the other way whenever possible. 2. Jack-o-Lanterns and Scarecrows are Fun Sensory-Friendly Activities! While growing up, my sister and I bought our own pumpkins, drew faces on them, and our dad used a small saw to cut the lines for the faces. Then we put our jack-o-lanterns on the porch right next to the scarecrow we made from clothes full of crumbled-up newspaper with a fabric sheet wrapped around a soccer ball for the head. The saw can be awfully loud, but the child doesn’t have to be in the room while it’s on, and simply cutting into the pumpkin with a knife will get the job done too! 3. Special Interests Can Inspire Costume Ideas I have fond childhood memories of preparing my Halloween costumes with my mom. One year, she helped me make a costume based on a superhero character I created. Another year, she bought used clothes to cut up, paint over, and distress so I could dress up as Two-Face from Batman. These were fun projects for my mom and me to bond over, and they were inspired directly by whatever I was interested in at the time. 4. My Costume Hurts! Autistic people often are hypersensitive to certain clothing materials or smells, and that can include the distinct latex odor of a rubber mask. These costumes would be no fun for kids on the spectrum to wear and at times can even be painful. So, parents should think twice about encouraging their child to wear a certain costume just because it would look “so cute.” If the costume is causing them pain, then the Halloween season will be no fun for them at all. 5. Trick-or-Treating Together Most kids go trick-or-treating in groups every year, yet a child with autism, who often struggles to make friends, might have nobody to spend the evening with besides Mom, Dad, or an older sibling. This can make Halloween a lonely time of year, and it can break the hearts of parents to watch their child go trick-or-treating alone. One solution might be to arrange a meetup with family friends who have kids around the same age as the autistic child. 6. Overstimulation Around the Houses A kid with autism could hate houses with flashing light patterns or loud sound effects, which could make them even less likely to say, “trick or treat.” A quick way for the autistic child’s parents to explain why their kid won’t make eye contact is to show the questioning parents a small card that explains the kid’s sensitivities. However, it’s not advisable to give that child an “autism” badge or make them carry a blue jack-o-lantern bucket because that could lead to bullying. 7. Will Stranger Danger be a Problem? Probably not. The kids will be surrounded by plenty of other adults also chaperoning their little trick-or-treaters, and most parents in neighborhoods are friendly. Also, the stories of kids being killed or injured by razor blades hidden in candy are mostly just myths. Any accounts of Halloween candy being tampered with are few, and hardly anything to stress about. 8. Sometimes the Child Would Rather Stay Home I personally loved dressing up and getting free candy, but when my work on the streets was done for the night, my mom handed the door-answering duties over to me. It was more fun for me to see the costumes worn by the other kids, some of whom were from my class. This could be more comfortable for a kid with autism—no costume to wear, no flashy lawn decorations to look at, no cold weather to walk through, and the only eye contact that needs to be made is with other kids. 9. Know the Limits of Candy I struggled in the past with just how much food was too much since I lacked the judgment of portion sizes that others had. Kids on the autism spectrum could be the same way, where they don’t know how much candy in one sitting is too much. While any kid would want to eat as much as they can in one sitting, they usually know by instinct when to stop. Yet by the time an autistic child has registered that they’ve had enough candy, they’ve already eaten twenty candy bars. 10. The Child Must Know When to Stop Trick-or-Treating I was twelve when I last trick-or-treated, which I’d say is an appropriate age to stop. While there are many things in life you shouldn’t feel ashamed of never outgrowing, trick-or-treating isn’t one of them. Autistic kids can lack common sense about whether they’re too old to enjoy something. In my experience, I was still watching preschooler TV shows when I was in third grade, and needed to be told what those shows’ target audience was. I hope these tips help your child with autism create as many happy memories of Halloween and trick-or-treating as I have. Trevor is an adult with autism and is the author of Six-Word Lessons on Growing Up Autistic and What Movies Can Teach Us About Disabilities. When I was in college back in 2014, I created my movie review blog, TrevorsViewOnHollywood.com, because I found during that time how much I enjoyed talking about movies. So whenever I went to see a new movie, I wrote a review on it and posted it on my blog. At that time, it all seemed to be going fine as a hobby, as there was some generally good feedback about it from friends and relatives. Then when I left college, I started working for my parents’ company, Consetta Group, where they worked with me to develop my own personal businesses, which included my movie reviews. I started to get more serious about it and tried monetizing it further, posting a new review every Friday, which likewise meant seeing a new movie in theaters every week. It was pretty exhausting, especially when I had to see movies I otherwise would never have wanted to see, but this format of reviewing movies motivated me to construct my own elaborate system for grading movies that I continued to perfect and master over the next several years. It helped me improve my ability to assess whether a movie was well-made or not. During this time, I was also heavily dedicated to following the Oscars, which included making predictions each year as to what would be nominated. I kept this up by posting a new review for a new release every Friday even after I left Consetta Group, and for a while, this all seemed quite effective. But then COVID-19 hit. Movie theaters closed. I couldn’t post a review for a new weekly release anymore. At first, I decided to review older classic films, with some direct-to-streaming releases mixed in, but as the months passed with movie theaters still being closed, I was losing my drive to review movies. Even when the vaccine became available, movie theaters opened back up, and life slowly went back to normal, my old passion for reviewing movies was gone. It started to feel like a chore to have to keep up my commitment to posting a new review week after week, and I hated having to sit through the big popular movies that I already knew going in were going to be bad. It didn’t help either that I was losing my respect for the Academy of Motion Pictures. I knew already that they nominated films based on campaigns and not based on filmmaking quality, but leading up to the 2022 ceremony, they were making horrifically insulting decisions to try and bring viewers back. Their decision to remove several of the categories from the live show was the straw that broke my camel’s back; I officially decided that for the first time in six years, I was going to boycott the ceremony. Upon looking back, I made the right decision. So that was one more step forward to dropping this hobby that was no longer fun for me. Yet here’s another thing: having to talk about badly-made movies affected my optimism outside of the hobby. My big “come to Jesus” moment was when I shared a pretty tasteless joke on Facebook about the Depp vs. Heard trial and was called out for it, which convicted me of how writing constant negative reviews for the popular movies was damaging my optimism throughout the day. So I gave it up. I never again posted on my blog. No longer did I feel pressured to see all the new Marvel movies or Disney live-action remakes. No longer did I have to bring a notepad into a movie theater and struggle to see what I was writing in the dark. I was free to watch what I wanted when I wanted. I was free to watch nostalgic guilty pleasures of mine, such as the 2002 Scooby-Doo movie, or older movies I was interested in checking out, such as Bedknobs and Broomsticks. I’m also free now to go to the movie theater on my own terms and watch movies I want to see. So out of my own free will, I saw both M3GAN and The Super Mario Bros. Movie; although neither was what I would consider “good,” I had a fun time with both of them. Then during the week of “Barbenheimer,” I decided to go see both Barbie and Oppenheimer. While I hated sitting through Oppenheimer, I was pleasantly surprised by Barbie. So it was worth joining in on the popularity bandwagon this one time so I could then join in on a conversation I wanted to be a part of. I am currently writing mini-reviews of movies I have seen in the past, and categorizing them to make it easy for people to find something to watch for fun, or other moods. They can be found on Instagram and on our Pacelli Publishing website. Overall, I can’t even imagine going back to my commitment of reviewing one new movie a week on an elaborate grading scale. I’m much happier this way. To learn about movies that depict disabilities, check out my book, What Movies Can Teach Us About Disabilities. The Star Wars fanbase is an extremely passionate bunch, with strong opinions of all extremes. I have learned much about myself and my relationship with social media because of my interactions with this fanbase. I hope my experience as a young adult with autism and avid movie buff will help others navigate some of the ups and downs of social media. Of the Star Wars franchise, I really love watching the original trilogy, the first two seasons of The Mandalorian, and two out of three films from the sequel trilogy. Now, I’m with everyone else who agrees that the last of that trilogy, The Rise of Skywalker, is hot garbage, yet a vocal majority of Star Wars fans also say the same about the other two sequel trilogy movies that I love: The Force Awakens and The Last Jedi, even saying they’re worse than any movie from the prequel trilogy. Whenever a Star Wars-based social media account posts anything even remotely related to the sequel trilogy, the comment thread is always toxic with hatred for all three of those movies. It presses my need to make my own opinion heard: I believe the first two movies from that trilogy are really good, even better than the entire original trilogy. I realize that putting this opinion out there only starts trouble, as these types of internet trolls are always happy to start fights with anyone who disagrees with them. Yet I just can’t stay away from voicing what I see as the truth, especially with a fanbase as toxic as the one for Star Wars, and I feel an overwhelming need to knock some sense into the idiots in that community, or put them in a position for me to report them and watch them get punished. You can follow this link to read more of my thoughts about all the Star Wars movies that I believe are worth your time to watch. This type of interaction is also tied to my anxiety: I’m afraid that no matter what my opinion may be, I'm always wrong. It doesn’t matter whether my opinion clashes with a child, a Harvard professor, or a jobless troll on the internet, I always doubt my own judgment. Often, when an internet user resorts to throwing insults, I take it a lot more personally than others do; I wonder if what they said to me is true. One time, someone on the internet called me a creepy middle-aged man (even though I'm 30) and it made me wonder if I really am creepy because I enjoy certain media primarily made for kids. Yet as much as I dislike engaging in online fights, I feel the need to do so in order to convince myself that the other is wrong. This addiction has prompted the decision for me to leave Twitter and Facebook. Looking back, I don’t miss those platforms one bit. So how then can others on the autism spectrum navigate a toxic world, especially when online, the place where much of our lives happens nowadays? Well, first off, it’s the duty of a parent to survey their child's internet activity like a hawk. Anyone can get in a lot of trouble online, and not just the illegal kind or the "revealing too much personal information" kind. The internet is full of a lot of scummy people, and the online setting seems to bring out everyone’s worst traits. The anonymity of comments makes spiraling down that rabbit hole of toxicity way too easy. Everyone needs to understand that social media bickering doesn’t do anyone any good. There will never be a winner, only two losers. Unfortunately, social media is much more attractive to kids on the autism spectrum since they don’t have to struggle to read facial cues. I for one am a slow processor when thinking of words to say verbally, and I often get lonely, so I have resorted to starting conflicts with strangers on social media to at least have some form of communication. That’s why I encourage involvement in social clubs and volunteer groups for more chances to meet with people face-to-face, something that we all need, autistic or not. However, because some fans’ hatred of certain Star Wars movies is not fully possible to avoid, and for reasons I’m still working on, I have clung to the fear that I should feel ashamed for loving The Force Awakens and The Last Jedi. I have found that I need to constantly remind myself of the great things done well in those movies. Despite my autism, it’s possible for me to find confidence in my own judgment, and you can do the same if you are on the spectrum. If your lack of confidence in your opinion is causing you genuine stress, then it’s time to shove aside whoever’s saying the opposite opinion. That may mean you have to leave social media, but you should do whatever you need to ignore the opposing argument and remind yourself of why you have the stand you’ve taken. I understand that this is not the familiar “be open to other people’s points-of-view” message, but if someone else’s point-of-view is causing you low self-confidence and diminished mental health, then that’s the time to shut off your ears to the other side. You can see my movie recommendations on our Pacelli Publishing website, and check out my book, What Movies Can Teach Us About Disabilities, which includes a chapter about how autism is portrayed in the movies. Author Trevor Pacelli wrote about some tips and do's and don'ts for children and adults with autism. See the full article here, and enjoy your summer! By Trevor Pacelli In thinking back to my childhood, I don’t recall knowing of any blind people at school or anywhere else; my only exposures to the blind community are limited to three media properties: The first is a blind girl named Marina from the hit TV series Arthur, who made a couple of appearances as the friend of a character named Prunella. One of those episodes taught kids the dos and don’ts of treating friends with disabilities, such as not trying to be too helpful unless they specifically ask for help. The second is from Pokémon: Ruby Version; in this game, there were three ultra-rare Pokémon, Regirock, Regice, and Registeel, who needed to be obtained by decoding a series of puzzles with braille descriptions. Being the Pokémon geek I was back in sixth grade, I was so desperate to get to these three legendary beasts that I made my mom drive me to the library to check out a book on translating braille… only to find out the dictionary we had at home already had a braille translator! Whoops! The last is Toph, the blind earthbender from Avatar: The Last Airbender. She used earthbending (or moving rock and dust with her mind) to create a mental picture of her surroundings by using the ground’s vibrations felt through her bare feet. Back then, I didn’t care much about her, mostly because I was a dweeby tween who believed her blindness made her incomplete. Later as an adult, I rewatched the whole series on Netflix, and Toph essentially became my favorite character, not just because of her rough n’ tough personality, but also because of how she turned her disability into an advantage to become “the most powerful earthbender in the world.” Ultimately, I was a pretty privileged kid back then who wasn’t able to consider the struggles of the blind community, which was much different from what I’ve learned in my research for this book. For instance, I discovered that when seeking out accommodations, blind people often lack authority when requesting accommodations from schools and workforces. Among those blind people raised by sighted parents, it’s common for their parents to think little of what their supposedly handicapped child can accomplish, in turn depriving them of fruitful experiences. Read more about the portrayal of blindness in film and media in my book, What Movies Can Teach Us About Disabilities. --by Trevor Pacelli I remember loving The Wizard of Oz as a kid. The munchkins scared me back when I was four because at the time I didn’t understand that some people have a condition that makes them smaller than usual. While it wasn’t enough to scare me out of watching the movie, the small people with disproportionate body parts and plastic hair singing like they were on helium left an unpleasant impression on my toddler self. I was always happy whenever it got to the part when Dorothy left Munchkinland because it meant the scary part was over. Throughout the rest of my childhood, television and film were the sole influences that exposed me to anyone shorter than five feet. I saw so many little people playing roles where their height demanded it that I became numb to it. Such roles from movies I used to love included the goblins from the Harry Potter movies, some of the whos from How the Grinch Stole Christmas, the Oompa Loompas from Charlie and the Chocolate Factory, and many funny TV commercials where a little person played an elf, troll, or any other little fantasy creature. Then of course there was the famous, “He’s an angry elf” scene from Elf that still has me on the floor laughing even after the hundredth viewing. The few times I did meet someone in person with dwarfism, my treatment of them fell much more on the dark side. I remember in my sophomore year of high school when I constantly made fun of a cheerleader who (I guess) had dwarfism, with a shoe size of only two. I wasn’t the only one: one student asked her, “Do you need a ladder to pick up a penny?” She also was teased for being able to fit inside a locker. Looking back, I’m so sorry I stooped low enough to join in on the bullying of her and other peers who were shorter than average. My exposure to various media was a massive influence on my belief that little people should be the butt of every joke, and are only half-human (no pun intended) compared to a person of average height. My book, What Movies Can Teach Us About Disabilities, sheds light on negative and positive stereotypes and representations of little people in the movies. Check out my book to learn more about how to better understand 10 different disabilities. |
Inspiration for Life with AutismThis blog is written by Trevor Pacelli, a young adult with autism and an author and illustrator. Guest bloggers are welcome. Categories
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